Anyone have experience with gastroparesis?

[CitizenBBN]

It's a delayed emptying of the stomach and can be due to a number of factors, but basically the stomach isn't active enough when you eat to properly digest many foods.

Usually is most pronounced with leafy greens, fatty foods, acidic foods.

I have a family member who has been diagnosed. Basically part of the stomach is paralyzed, making digestion difficult.

We're researching options, but there aren't a ton of them. Diet yes, but unfortunately the diet that works best for this is very carb heavy, which has its own issues. You can live on it, but hard to stay in great shape on it. You have to avoid a lot of vegetables, salads, and then of course eating out etc. is very limited.

I'm going to probably reach out to some place that I know is top notch, like Cleveland Clinic. They do have some specialty in this based on some other referrals, and a friend went there in the past and they were very impressive.

Just thought I'd ask and see if anyone in our group has any experience.

Thanks in advance. I'll hang up and listen to your answer. Oh, and is Ritchie going to play tonight?

[KentuckyWildcat]

Unfortunately my stomach has never been delayed. It is normally early.


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[CitizenBBN]

With this what happens, graphically, is that after your stomach doesn't empty in a given period of time, your body figures there's a problem, and you throw up for a few hours to clear the issue.

Needless to say it's not much fun. You end up eating either simple carbs most of the time or throwing up from your toes.

I"m looking at meds and treatments, but it's very limited.

[Doc]

It's a delayed emptying of the stomach and can be due to a number of factors, but basically the stomach isn't active enough when you eat to properly digest many foods.

Usually is most pronounced with leafy greens, fatty foods, acidic foods.

I have a family member who has been diagnosed. Basically part of the stomach is paralyzed, making digestion difficult.

We're researching options, but there aren't a ton of them. Diet yes, but unfortunately the diet that works best for this is very carb heavy, which has its own issues. You can live on it, but hard to stay in great shape on it. You have to avoid a lot of vegetables, salads, and then of course eating out etc. is very limited.

I'm going to probably reach out to some place that I know is top notch, like Cleveland Clinic. They do have some specialty in this based on some other referrals, and a friend went there in the past and they were very impressive.

Just thought I'd ask and see if anyone in our group has any experience.

Thanks in advance. I'll hang up and listen to your answer. Oh, and is Ritchie going to play tonight?

both my parents use the Mayo, the main one in Rochester MN. Easily the best place in the nation, bar none. Treat the entire body, not just what ailing you at the time. Treat with a team approach, team of specialists. Only place that could figure out my fathers intestinal bleed source. My folks have urged me to go there, and I have considered it.

For slow gastric emptying, drug called Reglan (metocloprimide) is the old standard. Are problably 50 newer drugs

[VirginiaCat]

I have heard of it but not experience. My issues are usually on the other side. That said, my issue is my food gets stuck in espophagus because the flap between esophogagus and stomach stays closed. Wierdest thing.

[CitizenBBN]

both my parents use the Mayo, the main one in Rochester MN. Easily the best place in the nation, bar none. Treat the entire body, not just what ailing you at the time. Treat with a team approach, team of specialists. Only place that could figure out my fathers intestinal bleed source. My folks have urged me to go there, and I have considered it.

For slow gastric emptying, drug called Reglan (metocloprimide) is the old standard. Are problably 50 newer drugs

Good advice, and we're trying to get referrals and may just go to Mayo or Cleveland on our own.

Re Reglan, the problem is tardive dyskinesia. You basically develop parkinsons with long term use. Apparently "long term" for this drug is 12 weeks, not years, due to that risk, so it's not a very viable long term solution.

UL has some expertise in this, they have a clinical trial setup for gastroparesis, and I know Cleveland Clinic does as well. Not sure about Mayo. We're looking at those options to get to the most expertise possible.

I thought I'd throw this out here to see if anyone had insights or experience. I'm actually surprised at the relative lack of medications available based on research thus far.